We are not doctors. This is not medical advice. You need to verify all information provided with your doctors. The information on this site was provided by medical professionals. If your doctors need to verify any of the information on this site please contact us or have your doctors contact us so we my connect them or you with the doctors themselves.
Therapies for EDMD do exist, however they are only for treating some of the effects of the disease and do not currently exist to “treat” the disease itself.
Some of these therapies include surgeries for some of the contractures or daily therapies for lengthening the muscle fibers to slow the contracture rate. See our pages on each for more information on these therapies as they exist today.