International Foundation for Emery-Dreifuss Muscular Dystrophy Inc.© All Rights Reserved.  Reproduction without permission prohibited.

We are not doctors. This is not medical advice. You need to verify all information provided with your doctors. The information on this site was provided by medical professionals. If your doctors need to verify any of the information on this site please contact us or have your doctors contact us so we my connect them or you with the doctors themselves.

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Medical Information Sheets

Each page on the website is available as a PDF file for you to download and take with you when speaking with medical professionals.

Don’t forget about the medical alert wallet card - you can fill it out, print it and laminate it yourself or we will laminate it for you.

The information sheets are provided to give you talking points when visiting your doctors. The information was gathered in conversations with doctors and signed off on prior to publishing here. However this information is not provided to you directly from a medical doctor and you should use it for talking points with your own doctor only. Nothing on this website or on the downloadable sheets should be taken as medical advice. Speak to a doctor but educate yourself before you do so that you have a general knowledge of what you need to ask about and make sure the doctor is aware of.





Cardiac PDF Neurology PDF Genetics PDF

Medical Alert Card

Medical Alert Card