We are not doctors. This is not medical advice. You need to verify all information provided with your doctors. The information on this site was provided by medical professionals. If your doctors need to verify any of the information on this site please contact us or have your doctors contact us so we my connect them or you with the doctors themselves.
We have a secure community forum for families to connect in a more private way than using our public Facebook page.
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Private Facebook Forum
Thanks to one of our community members there is a very active EDMD Forum you can participate in on Facebook. Connect with other members of our community and those around the world diagnosed with EDMD. Click here.